Movement monitors are designed to detect several seconds of sustained convulsive movement like that of a tonic-clonic (grand mal) seizure. They are often used to alert caregivers to nocturnal convulsive seizure activity. You may be eligible to receive a movement monitor through the EAWCP and the Emma Bursick Memorial Fund.
The Emma Bursick Memorial Fund (EBMF) was established in 2009 in memory of Emma Bursick who died from Sudden Unexpected Death in Epilepsy (SUDEP) at the age of seven. The EBMF’s mission includes: funding for emergency medication programs and epilepsy research; community outreach via presentations & seminars; training for Medical Examiners, health care providers, and professional organizations; and grants that promote patient and family self-advocacy for improved epilepsy treatment, healthy living, and hopefully, a cure.
The EAWCP will provide financial support to qualified applicants through the Emma’s Gift grant program from the EBMF for purchase of in-home monitoring devices. We encourage and strongly recommend that you communicate with the device manufacturers, and consult with your doctors about the effectiveness of such devices for your specific needs. Please review the product options below.
The EAWCP continues to research information on non-invasive seizure detection and monitoring devices as well as other developing technologies. Although these devices have not as yet been proven to prevent SUDEP, we feel strongly that people living with epilepsy or seizure disorders should have information and resources at their disposal to support living well with seizures.
The SmartWatch Inspyre™ by Smart Monitor is designed to be used on a Samsung or Apple Watch to detect repetitive shaking motion. When the Inspyre detects abnormal motion, it sends a signal to the app running on the user’s device (iPhone or Android phone) to send text and phone call alerts to whomever the SmartWatch Inspyre™ user designates, such as multiple family members and care providers. This feature utilizes the watch’s Bluetooth® functionality to connect with the wearer’s smartphone. This means that the wearer must have their own cell phone with a data plan paired to the watch to ensure that messages that include the date, time, location, and duration of the event are accurately delivered to the designated individuals. SmartWatch Inspyre™ users can also summon help with the push of a button. Alerts can be sent to any phone, anywhere, and reports of each event can be accessed for later review with physicians.
For more information on the SmartWatch, visit www.smart-monitor.com or call 1-888-334-5045.
It is important to note that this grant will cover the activation fee, one year of service, and $150 towards the Smart Watch of your choice. You will be responsible for the monthly fee after the first year of service as well as the remaining cost of the watch.
The Emfit Movement Monitor is a bed monitor that triggers an alert when it senses repetitive muscle spasms like that of a tonic-clonic/grand mal seizure. The Emfit Movement Monitor consists of two main components: a flexible and durable bed sensor placed under the mattress and a bed-side monitor with sophisticated embedded software. The Movement Monitor detects when a person has continuous fast movements over a pre-set amount of time (which is adjustable to suit your needs) and then triggers an audible alarm.
For more information on the Emfit Movement Monitor, visit www.epiusa.com or call 877-32EMFIT.
It is important to note that this grant will only cover the cost for the initial monitor and alarm pictured here. Any additional accessories are up to you to purchase.
SAMi is a sleep activity monitor which is placed facing the bed of the person with epilepsy. During sleep, audio-video information from a remote infrared video camera is sent to an application running on an iOS device such as an iPhone or iPod Touch. The SAMi app records and analyzes the video for unusual activity. If the SAMi notices repetitive movement, it will sound an alarm in the SAMi app.
For more information on the SAMi, visit www.samialert.com
It is important to note that this grant will only cover two SAMi package options. Any additional accessories are your responsibility. Also, this device requires internet access and Apple devices.